Wednesday, 18 March 2015

Update 22 - 18th March, 2015

OH YEH BABY - twice in 24 hours!!!  Andy, Louise, Gav, Victoria, Anne Marie and Viv thanks for your words of encouragement. They have worked.  A bit of a frustrating morning at the Royal Marsden.  We saw another doctor (not cute and not European!) this morning but who at least had comprehensive notes on Emma from her last trip, so we are making progress in that department.  They have done some molecular analysis and Emma's cancer has mutated apparently.  So based on that data they thought they had a suitable trial which focused on that mutation.  However, the treatment came in the form of horse tranquilizer sized tablet which Emma cannot swallow. So its back to the drawing board now.  It was a bit frustrating, but we met a fantastic nurse specialist who was really helpful and made a couple of calls and offered some great advice, so it was not a wanted journey.  They will keep in touch by phone now and call Emma over when they need to see her.

James and Rebecca have a day off tomorrow at a local secondary school where they will rehearse for the day and then play in an orchestra in the evening which is very exciting. Violin for Rebecca, guitar for James. I was leading the comb and paper section but unfortunately now need to be in Lincolnshire.  Anyway you are now up to speed which is a miracle in itself.

On the work front I continue to try to grow my new business BizSchool.  We have just completed a course at the Abbey School in Woodbridge in Suffolk.  Anyone who thinks their children or their school would benefit from a fantastic business course culminating in the children actually going into business then just let me know.  We can be found at www.bizschool.org.uk or email me at andrew.kinniburgh@bizschool.org.uk.

The Abbey students hard at work refining the winning business plan which combines a car wash with shoe polishing.  Genius.    

The Master of the Abbey with BizSchool's Matt King (left of me), and Messrs French and Smith on the right. The sharp eyed will note that I am wearing Matt's walking shoes.  My own shoes decided to stay in Hampshire for the day!    
       

Tuesday, 17 March 2015

Update 21 - 17 months on...sack the blogger....sack the husband 17th March, 2015

Hmmm, sorry doesn't really cover it does it!  New Year's Resolution, keep on top of the blog! It has been so long that I am going to start from now and work back quickly over the past year.  It has been pretty eventful from an Emma health perspective.  We visit the Royal Marsden tomorrow to meet with a member of Prof De Bono's team. We have yet to meet the great man himself so whether he is tiny and insignificant and in the mold of the Wizard of Oz or a towering figure remains to be seen. All that we know at the moment is that he has a penchant for attractive European lady doctors, two of which we have met recently.

We are awaiting news of possible trials for Emma at the moment. This is because her cancer has become chemo resistant which is rather irritating.  The Marsden runs around 32 trials at any one time so we are very hopeful of a result.  We last visited two weeks.  Emma is doing really well despite quite a bit of pain and trouble sleeping.  She is being looked after by and excellent palliative care consultant at the Royal Surrey so she is now patched up to the eyeballs.  Her bedside table is beginning to look like a Tracey Emin piece. Time to post.  Sorry again and love to all if anyone is still even hooked up to this blog after all this time.  Send messages please this will encourage me to do more blogging. Andrew



Emma looking very glam despite being in Doncaster for my team Christmas do!  Dec 2014

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3 out of 4 McCafferty's is not a bad count.   Jim, Max and Freddie on a visit from Hong Kong in December 2013, we missed Clare though.  Walking around Frensham Little Pond.  
The arrival of Mac, our chocolate brown working cocker spaniel has to rank as the event of the year - possibly the decade in the Kinniburgh household.  Emma and Mac had some difficulty keeping their eyes open in January 2014. 

My beautiful girls on Ludshott Common, summer 2014

Mac again before he started growing in earnest

Emma experiencing what it would be like to ride in a carriage at the National Carriage Museum at Arlington Court in Devon on our annual Quickfall / Kinniburgh week away.  

For the nerds out there that like aircraft this is an RAF E3-D Sentry AWACS on flight test at RAF Waddington in Lincolnshire.  I have been working there for 12 months now and hopefully longer as an independent consultant.  

Emma looking rather gorge in October 2014 
The full grown version of Mac.  Still pretty cute though. 

The children at Wisley Food Festival October 2014.  The sharp eyed amongst you will spot an old pal from Edinburgh on the left of the picture included by coincidence - small world.  
James, Rebecca and Hannah at the Royal Surrey Regimental Museum at the Clanfield Park, Guildford in October 2014.

A rather small soldier with a rather large cap on!

The amazing poppies at the Tower of London in November 2014.

Another poppy shot from Traitor's Gate at the Tower of London.

The glamour pusses at Hannah's 12th birthday party in November 2014.